Informação em saúde para o público leigo: os âmbitos da produção e transferência de informação nas entidades de apoio a pacientes / Health information for the lay public: the areas of information production and dissemination in the entities of support for patients

AUTOR(ES)

Elenice de Castro

DATA DE PUBLICAÇÃO

2007

RESUMO

Study on the phenomenon of the support groups for the patients under the optics of Information Science, with a view to the issues related to the information access and knowledge in public health; in the context of the paradigmatic transition of the modernism to post modernism, the support groups are considered as innovative input for patients under the standpoint of the support for the health promotion and the quality of life improvement. The research, a qualitative empirical survey, analyzes entities that promote support groups for patients of non communicable chronicle diseases, aims to identify which information sources the patients seek in order to deal with the uncertainty, and distress in face of the diagnosis of a chronicle disease. The results of the interviews with health professionals and patients show the importance of the groups and their character of confidence and underlying solidarity. It concludes that the patients consider physicians as their most important sources of information, but also ask the nurses, friends and the media for more information. The study suggests some parameters for the expansion of the public operation of the support groups with a view to the health promotion, to the free and open access to "translated" scientific information in public health. It suggests also that there is a lack of specific information systems to support the professionals that work as information intermediaries in such groups.

ASSUNTO(S)

grupos de apoio a pacientes support groups information science health information non communicable diseases doenças crônicas não transmissíveis ciência da informação informação em saúde

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