Quality of life of individuals with sickle cell disease followed at referral centers in Alagoas, Brazil
AUTOR(ES)
Vilela, Rosana Quintella Brandão, Cavalcante, Jairo Calado, Cavalcante, Bruno Fernandes, Araújo, Diego Lisboa, Lôbo, Matheus de Melo, Nunes, Fernando Antônio Tenório
FONTE
Rev. Bras. Hematol. Hemoter.
DATA DE PUBLICAÇÃO
2012
RESUMO
BACKGROUND: Sickle cell disease is a genetic, hereditary and chronic disease that affects the health of its carriers and might impair their health-related quality of life. OBJECTIVE: The aim of the current study was to assess the health-related quality of life of individuals with sickle cell disease followed at referral centers in Alagoas, Brazil. METHODS: A total of 40 individuals with sickle cell disease aged 12 to 43 years old were evaluated by means of sociodemographic and clinical questionnaires, the Medical Outcomes Study 36-Item Short Form Health Survey and the Beck Depression Inventory. The latter was applied only to adults. RESULTS: Most participants were adults (62.5%) with a predominance of the SS genotype (85%) with pain being the commonest complication (95%). Mood disorder was found in 40% of the adults. The patients exhibited overall impairment of quality of life, which was more pronounced among the adults and under 15-year-old adolescents. Married adults exhibited less impairment of most quality of life domains compared to unmarried adults, and the adults with mood disorder exhibited greater impairment of all quality of life domains. CONCLUSIONS: These results suggest that interventions that aim to improve vitality, pain, and mental health might contribute to maintaining high levels of quality of life in patients with sickle cell disease, especially among adults and under 15-year-old adolescents.
Documentos Relacionados
- Sickle Cell Disease: quality of life in patients with hemoglobin SS and SC disorders
- Oral health-related quality of life of children and teens with sickle cell disease
- Prevalence of enuresis and its impact in quality of life of patients with sickle cell disease
- Resting blood lactate in individuals with sickle cell disease
- Sickle cell disease and pregnancy: analysis of 34 patients followed at the Regional Blood Center of Ribeirão Preto, Brazil